Posts tagged #post surgery

Things to make surgery suck a little less

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When you are diagnosed it isn't just about doctor appointments and making sure you have all of that in order it is figuring out what you need for your upcoming surgeries. This is a list that has been compiled through many different people and what they found most helpful. What may work for one person may not for someone else. Did you have something that worked for you that would like to share, please comment!! We need to reach out and be there for each other....

-Set up a table next to the bed so everything was within arms reach. The first few days the less you have to move the better (for me anyway. I put my meds, music, ipad, phone everything I needed close by, the major pain for me was the drain where they were stitched to my skin, when I moved it would pull and hurt.

-A notepad to keep track of your drains and the amount you dump.Plus keep track of your medication

-A couple of cases of water and opened one case and put them out on the table and used one of those plastic cups with the plastic straw. Easier to -sip a straw then tilt a bottle

-A eye patch and ear plugs to help in sleeping, this worked great!!

-Button up jammies.

-Button up shirts to go to your follow up appts.

-You can’t shower for a while, so I bought Facial cleansing cloths and also -Body cleansing clothes to clean your parts.

-Can of dry shampoo, absorbs the oil.

-If pain meds bind you up (like they do me) you might want to start taking a stool softener a few days before surgery and keep taking them as long as you’re on the pain meds rust me, you DO NOT want to get bound up.

-An ipad or tablet or computer right by you to help pass the time.

-Back scratcher

-Lots of pillows, as laying down was not an option. A lot of people actually borrowed or had a recliner to sleep in was the most comfortable to sleep.

-Satin PJs or sheets make it so easy to get in and out of bed.

-The drain pouches are great for keeping those stupid drains in one spot and keeping them from tugging.

-A recovery cami is comfortable and ideal

-The husband pillow is a great alternative to a recliner

Change your shower head to an adjustable one, makes showering so much easier!

-Pre-cut snack like veggies and cheese sticks helps to stay healthy while sitting around and not being able to cut up those items

-The Fishbellie (corn bag) was PERFECT for both heat and keeping cold!

-Draw string pants are fabulous!

-If you have children have a basket of new books, coloring items, movies that you can pull out when you just need a break

gift certificates to local delivery restaurants when there is no way you can cook

-ANY opening in the front bra is a MUST

-The Zip up makes a cute hoodie for hiding those awful drains

-A pill holder for all those meds

-An organizer for all your information.

-Those hot flashes come fast, obsessed with Fancy Fans

Posted on June 20, 2018 .

Divas at your service-Happy One Year Anniversary to me

It has been one year since I joined the CureDiva team or better yet family. When I was first asked by Efrat to blog she wanted me to dig deep for my first post about body image. Efrat wanted the Diva Community to see just what my blogs were about. Efrat wanted the lounge section be a place where woman could find the help, tips and resources they could feel trusted, just like girlfriends relying on each other. I have felt like in this past year I have helped build this community just like my girlfriend wanted. Here is the thing, there is so much to CureDiva people have no idea about. I have seen posts and and questions about the site being just a shop and  selling "stuff". While yes it is a shopping mall it is so much more and in the past year I have learned just that. I have decided to share some stories just so everyone can see what CD is about. 

Cure Diva offers two services that no site seems to have. One is the Guardian Divas.  An area that I run and am honored to be a part of. Woman who are looking for support can now reach out to these guardians who have been there. Seems like a win win because for the guardians it ends up being the therapy they need to heal. You know it is never over and this helps us push through. The other is "Divas at your Service".  In the bottom right corner a screen pops up asking for help, seems simple enough. Except what is on the other end is not a computer or mass of people randomly answering questions they know nothing about. It is myself, Lisa or Carole woman who get it, who understand and want to help you through your cancer process. May not seem huge but when you are DX with breast cancer which is so private this intimate chat is so such a relief. I want to explain just how.

The Alone

I was on the service and chatting nicely with a woman who was very alone. She lived in a very secluded wooded area and none of her friend ever had breast cancer. Her support was great but no one really understood. After her mastectomy she had chemo, rads, a horrible infection, implants removed and scars so bad she can not use any prosthesis, NONE. She hated this, she missed her breasts, any breasts, she just wanted to be a girl again. She hated, loathed how she looked without a bra, is there anything she could do. I gave her my number and she called me. I showed her various bras and we decided on the Ana Ono kelly Lace . The fact that this bra was made by a breast cancer momma made her so happy! Great she said and we hung up. About a week later I got a call apologizing for bother me. "Alone" wanted to tell me that the bra was just what she needed. It made her feel like a woman, she felt pretty again like herself. She was always pretty I am sure but the bra gave her that boost! She thanked me about 100xs for giving her a piece of herself back and then I heard it-the tears and crying. We sat there in silence both crying for what felt like a minute but was probably 10 seconds. That moment it was about sisterhood, that is CureDiva.

The Grandma

I got an email from Carole asking me to help this sweet old woman, no problem. She was 87 and a 21 year breast cancer survivor!!! Hated that young kids were getting breast cancer said it was for old ladies and a stupid disease. I loved her right away. She didn't leave the house much but had a single mastectomy, used a walker and needed a new prosthesis her old one was "shot to hell in a hand basket". After an hour and 45 minute chat were I tried to figure out which one she had and find a bra we placed an order. I called her back when I knew she got it. She was so happy that I not only called her but remembered and even happier that it works like a dream. Now she will look all together at church, "you made this old lady happy". that is CureDiva.

The Uni  

Our PR told us about a TV show doing a make over for a breast cancer patient and could we send some products. Great, that sounds just perfect. After getting some info I asked if I could please talk to the star because we needed to know some info that would help with the bra and the prosthesis. After some persuading they said yes. So I rang the woman, "Is this AnnMarie of SDBC" was her response. Not only did I know her but I LOVE LOVE LOVE her. She is a young BC girl who needed this make over and a prosthesis.   See she had been knitting herself one, yes you read that right. After we both burst into chills and tears I go her measurements. For her it wasn't about getting just a bra it was about getting back into her life. She needed to start getting out of the T shirt and jeans and start having a little style like she did before all this shit!  I loved picking out her bras ( I found ones with pretty colors that would look great on her) and inserts, knowing who was getting them made me so happy. That is CureDiva

 

The Brobe

I was helping this lovely woman with her mastectomy prep. Her doctor never gave her the info about using a recliner to sleep in so I told her about the BedLounger. She was so excited to have these tips. We chatted about treatment what she was feeling and what was next. She wanted all the options possible for dealing with drains and really wished we had the Brobe which was on back order. I do this 'Sisterhood of the Traveling Brobe" and sent her mine. She was blown away by this plus I sent her a Bravery Bag. We have been texting ever since. She sent the Brobe back and I have since sent it on to the next but that is what CureDiva is about making that connection.

CureDiva is not just a shopping page it is a community set up to give the best possible platform for connecting to others. I have made so many incredible connections through this page. I did not even blog about the vendors!!! Nor have I discussed my Tali, my sun who I love with my heart even a sea can not break our sisterhood. I work with a small company that I am in contact with daily. They listen to the voice I have for the breast cancer community and respect those crazy comments I have. Aya, Dana, Maor, Zohar, Carole, Lisa, Mor, Ayete  all work together with the same mission to make CureDiva a community not just a page. Now if only I can talk them into a tiara section it is the only page we are missing! 

Happy one Year Anniversary to me!