Done

Hey all-
AM is out of surgery and the doc said all went well. Did she wear heels in? Of course. Was she loud and inappropriate? Yep. Did she kick cancer's ass? Officially. She'll need to be in recovery for a while, but will go home later today. Thank you all for your support and friendship through all of this. We hope this brings the hard part of this journey to a close. I'm sure she will post as soon as possible...
Tom
Posted on November 9, 2012 .

Scalpel



After a great night's sleep, BLAHAHAHAHAH, I am ready for a coffee or surgery. I wish I was going to be awake just before surgery to say "Scalpel", it sounds so doctor like. As I have said before, I have a very bad habit of saying the most inappropriate things while under, so this seems harmless. I stopped eating after midnight, good thing I didn't have the late night munchies. And now I get nothing, not even coffee, a mint, water, gum, WHY me why?? Ok so this is the rule before surgery but I really want coffee. Today is surgery number 4, YUK. I have seen my boobs change so much in the past 6 months it is crazy. From getting them mutilated at the lumpectomy (no fault of my amazing doctor- the nipple did not look great after), then they got lopped off and filled only to be cut open again and stuffed. I just can't wait to get them tattooed. Tom drew the prettiest magnolia and butterfly, gonna be hard to not show those off!

While I know there is not a limit to how many surgeries one can have, let's be honest. The more you have the higher the risk. There is always the risk of infection, I mean that is one hell of a cut they are making AGAIN, it is not paper cut. Not to mention I do not do well with anesthesia. PLUS, what shoes am I going to wear? I may have set the bar high with my mastectomy heels... And this random thought of the typical grandma comment keeps popping into my head, "make sure you have clean underwear on, cause you never know." Always cracks me up, but I am stressed I will pick the wrong underwear!  If only I had pink ribbon panties, LOL. I am scared they will open me up and see cancer all over and then I am screwed. Totally irrational, I know, but seriously this journey has been uncontrollable, hate it. The recovery (even though I hear you bounce back quick) will leave me laid up for awhile, I HATE SITTING STILL!! I want my real workouts back. I want to get rid of this 10 fucking pounds I put on. I am 4 feet 11 inches, that weight shows. It still blows my mind that they preform these surgeries then send you home that day. Do not get me wrong, I do not want to stay over, but there are people who need that stay. SHHIIITTT I come home to a house full of kids. I do not think I thought this through, looks like NyQuil for all!

Instead of sending me well wishes, cause let's face it I am just going to be laying there, send them to the doctor and the staff. Let your good vibes give my plastic surgeon a steady hand, calm, mind as he does his work. I swear if I wake up looking all Dolly Parton heads will roll! Hope that the hospital staff has the patience of a saint for dealing with me today and the humor of a comedian, they are going to need it. I just hope the waiting room is big enough for my entourage. I had a dream that my doctor was Edward Cullen's "father" from Twilight, yes I am too lazy to look his name up. I can not tell if dreaming your doctor is good or bad? I am more of a werewolf girl after all:)

Thank you to my cousin Heather who set up the mealtrain for next week. Although we do not need it, it is totally appreciated and I know people love to do that. We look forward to some good eats. Anthony told his class that when I had surgery "we had to eat his dad's cooking and deal with it". I am not sure what he is talking about because the meal train was awesome and my man makes one hellava pizza (for someone of the non-Italian species).

I will be signing off for now. Tom will blog later about surgery and tell you all how amazing I am and that he could not have a better wife. Then MC will post on FB how she is thinks that I am Superwoman and she wants her daughter to be just like me and not like her at all. Genevieve will be there snapping pictures and telling me to "work that hospital gown". My father, G-Deb, my brother and my sister will all be in the waiting room discussing how maybe just maybe I really am a princess after all......

Good bye to this stage of Stupid Dumb Breast Cancer





Posted on November 9, 2012 .

Mammos and wigs and support OH MY

 
 
 

Garment Resources

Local Garment Resources

Rothschild Home Health Care
www.rothhomehealth.com

817 E Genesee St
Syracuse, NY 13210
(315) 475-5181

Lady Jane Mastectomy Boutique
www.ladyjaneboutique.com

892 E Brighton Ave # B
Syracuse, NY 13205
(315) 498-9086
 

New Beginnings
5008 Brittonfield Pkwy # 200
East Syracuse, NY 13057
(315) 634-1295‎
Online Garment Resources

http://content.yudu.com/A1xm5z/FallWinter2012/resources/index.htm?referrerUrl=http%3A%2F%2Fwww.tlcdirect.org%2FCancer-Scarves-and-kerchiefs-for-Women-Cancer-and-Chemo-Patients-American-Cancer-Society-TLC-Direct

Tlc-tender loving care is a not-for-profit website and catalog of the American Cancer Society. Our mission is to help women cope during and after cancer treatment by providing wigs and other hair loss products (plus how-to information), as well as mastectomy products, all at affordable prices.


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Wigs and Head Coverings
ACS Wig Program – A program that provides free wigs from limited supply to needy patients suffering from hair loss due to cancer treatment. These wigs are intended for those with insufficient insurance coverage for wigs. For more information: Call the American Cancer Society at 1-800-ACS-2345 or visit www.cancer.org

New Beginnings
5008 Brittonfield Pkwy # 200
East Syracuse, NY 13057
(315) 634-1295‎

Mr. C’s Hair Replacement Studio
315-458-9568
6088 E. Taft Rd., N. Syracuse, NY 13212
www.mrcshairstyling.com

Profiles by Kristin
315-454-3132
2113 Brewerton Rd., Syracuse, NY 13211
www.profilesbykristin.com

Genesis II Hair Replacement
(315) 458-1074
405 East Taft Rd., North Syracuse, NY
www.genesishair.com

A&E (Real Hair Wigs Only)
5781 Bridge St., East Syracuse, NY
315-445-1177

Hot Cocoa’s Hair & Beauty Supply
(315)469_4826
4200 S. Salina St., Syracuse, NY

 
 
 
 
 
 
 


Free or low cost mammograms, education/awareness programs, and patient navigation in Central New York

The New York State Cancer Services Program will provide free breast screenings to women 40 years and older and who are uninsured or cannot pay for these services.

In Onondaga County: 315-435-3653
Outside Onondaga County: 1-866-442-2262

 

2012 - 2013 Grantees – Funded by Komen CNY
ARISE Child & Family Service, Inc.

Phone:  315.472.3171

Email:  nlutz@ariseinc.org

  • Provide breast health outreach & education to underserved woman, including African American and Latina populations, and also women with disabilities
  • Assist in overcoming barriers to receiving screenings and follow-up health care when needed

 

Canton Potsdam Hospital
Phone: 315.244.3007   
Email:  jdow@cphospital.org

  • Patient navigation throughout screening, diagnosis and treatment

 

Carthage Area Hospital
Phone:  315.519.1530

E-mail: caoutreach@carthageareahospital.com

  • Outreach & awareness programming to underserved populations

 

Cayuga County Health Department

Phone: 315.253.1560    
E-mail: joan.knight@dfa.state.ny.us

  • Breast cancer screening & diagnostic
  • Provide breast health education and clinical breast exams

 

Chenango Health Network- Every Woman Counts
Phone: 607.337.4128
E-mail: sharon@chenangohealth.org

  • Community based education & outreach activities
  • Support for uninsured/underinsured women to receive screenings & follow-up care if necessary


 

Crouse Hospital / Crouse Health Foundation
Phone: 315.470.7015

E-mail: kathleenmiller@crouise.org

  • Outreach & awareness of free and reduced-cost services
  • Patient navigation through the continuum of care
  • Breast Cancer & Lymphedema Physical Therapy

 

Highland Hospital

Phone:  585.487.3304

Email:  stacy_portella@urmc.rochester.edu

  • Provide awareness on importance of self-exam and clinical exams, mammography and support services for medically underserved populations
  • Educational materials and outreach activities providing breast health education, health resources and referral systems
  • Aid in overcoming barriers to care through patient navigation from initial screening, through treatment and follow-up, when necessary

 

Lewis County Public Health Agency- Circle of Care Breast Cancer Navigation Program
Phone: 315.376.5453
E-mail: egrunert@health.co.lewis.ny.us

  • Community based breast cancer navigation program
  • Provide screenings for those who do not qualify for Cancer Services Program

 

Oneida County Health Department

Phone:  315.798.5229

Email:  whunt@ocgov.net

  • Provide breast cancer screenings through Cancer Services Program
  • Screenings, education and awareness for women of the Oneida Indian Nation, Latino population and women in rural areas

 

Onondaga County Health Department

Phone:  315.435.3653

Email:  jennydickinson@ongov.net

  • Culturally appropriate materials for education & outreach to at-risk populations
  • Provide support and reduce barriers for urban African American women and Onondaga & Oneida native women to receive breast cancer screenings

 

Spanish Action League on Onondaga County, Inc.
Phone: 315.475.6153  ext 212

E-mail: fsm@laligaupstateny.org

  • Awareness for Latina women on screenings and early detection through educational workshops
  • Provide interpreters for doctor appointments and assistance in insurance paperwork and necessary resources for the uninsured/underinsured

 

 

St. Lawrence County Public Health Department

Phone: 315.386.2325

E-mail: cfield@co.st-lawrence.ny.us

  • Breast cancer screening through Cancer Service Program
  • Staff assistance through screenings and follow-up scenarios

 

St. Joseph’s Hospital Health Center Foundation- Lymphedema Education & Prevention

Phone: 315.703.2035
E-mail: janine.capucilli@sjhsyr.org

  • Provide treatment and self-management skills for breast cancer patients suffering from the effects of lymphedema
  • Educational seminars for the community and providers

 

University of Rochester

Phone:  585.224.3070

Email:  Candice_lucas@urmc.rochester.edu

  • Provide clinical breast exams and ensure access to annual mammograms for uninsured women
  • Provide education and awareness, through workshops and bilingual materials, on the importance and availability of screening and diagnostic services

 

Financial Resources for People Living with Breast Cancer
There are many financial resources to help people with breast cancer. The first place you can turn to for advice is a trusted health care provider. Physicians, nurses and social workers can all provide information and advice about financial matters. Hospital discharge planners, patient relation offices, patient service offices, social workers and patient navigators at hospitals or managed care organizations may be helpful too. For questions about specific insurance policies, state insurance agencies and insurance companies can be helpful.

Many state and national organizations provide information about financial assistance and insurance. Some of these are listed below along with resources to help with travel, lodging and medical items, including prescription drugs.

Local to NYS and Identified Counties in NYS
St. Agatha Foundation
Phone: 888-878-7900
www.saintagathafoundation.org
For help paying for the following costs: treatment, procedures, testing, prescription co-pays, medication not covered by insurance, Office visits or Procedural Co-pays, Wound Care Systems, Breast reconstruction, Lymphedema Sleeves, Alternate Treatments not covered by insurance, Transportation to and from treatment, Prostheses, Post-surgical camisoles, bras, wigs, and wellness needs.

Serves patients in Onondaga, Cortland, Cayuga, Madison, Oneida, and Oswego counties.
Works directly with the hospitals or practice where the survivor is currently receiving treatment.

Embrace Your Sisters

Phone: 585-624-9690

Embraceyoursisters.org
Embrace Your Sisters (EYS) is a 501(C)3 non-profit organization dedicated to helping people in the Finger Lakes region (Livingston, Monroe, Ontario, Seneca, Steuben, Wayne, and Yates counties) with emergency funds when faced with the diagnosis of breast cancer, allowing them to focus on their families and recovery. Funds can be provided for mounting co-pays and medical expenses, rent/mortgages, utilities, and other necessary expenses.

SIS
Phone: 585.362.0626

http://www.helpsis.org
A non-profit organization created to provide financial assistance to those during the battle of breast cancer. Help provided for: Rent/Mortgage, Utility Expenses, Vehicle Payments, Childcare, Groceries, Pharmacy Co-pays, Uncovered Prosthesis/Medical Clothing, Wigs, Transportation.

Mary Lukas MRI Foundation
marysmrifund@yahoo.com
www.mrifund.org
MRI Funding by this Not for profit organization to assist individuals at risk for breast cancer and without the means to pay for an MRI.

New York Bridge Plan
In New York State, the PCIP plan (the Pre-Existing Condition Insurance Plan) is called the NY Bridge Plan, and is administered by Group Health Incorporated (GHI), an EmblemHealth company.
       To be eligible to apply, individuals must:

·         Be a legal U.S. resident;

·         Be a resident of New York State;

·         Have a pre-existing medical condition;  

·                                                                                                    and not have had health care coverage for the last six months.
The NY Bridge Plan covers a broad range of services, including primary and specialty care, inpatient and outpatient hospital care, and prescription drugs, as well as assistance from professional nurses and caseworkers to help members manage chronic conditions and maintain overall health. Eligibility is not based on income. Coverage for a pre-existing condition begins right away, with no waiting period. Health insurance coverage under this program is more affordable than what is currently available in the individual market. Through the NY Bridge Plan, premiums will be $362/month for residents of upstate counties and $421/month for residents of downstate counties.

Enrollment is on a first-come, first-served basis. If the NY Bridge Plan reaches capacity, a waiting list will be established. If you need an application and brochure mailed to you, please call 1-877-444-9622 begin_of_the_skype_highlighting or toll free 1-877-444-9622 end_of_the_skype_highlighting.

 

Inflammatory Breast Cancer Foundation
1-866-944-4223
www.eraseibc.com

 

Information on Financial Issues and Insurance
American Association of Retired Persons (AARP)
Gives detailed information on Medicare and other health insurance programs for people over 50.
888-OUR-AARP (888-687-2277)
www.aarp.org/health

American Cancer Society's "Taking Charge of Money Matters"
Offers a series of booklets on financial topics for people living with cancer.
800-ACS-2345 (800-227-2345)
www.cancer.org

National Coalition for Cancer Survivorship
Publishes the booklets "Working It Out: Your Employment Rights as a Cancer Survivor" and "What Cancer Survivors Need to Know About Health Insurance".
301-650-9127
www.canceradvocacy.org

Patient Advocate Foundation
Offers legal and advocacy help when disputing insurance claim denials and provides financial assistance information.
800-532-5274
www.patientadvocate.org

Social Security Administration
Find your local social security office.
http://www.ssa.gov/

US Department of Health and Human Services: Agency for Healthcare Research and Quality
Provides information on choosing a health plan.
www.ahrq.gov/consumer/cc/cc060308.htm

US Department of Health and Human Services: Medicare
Provides detailed information on the Medicare health insurance program, including Medicare prescription drug plans.
800-MEDICARE (800-633-4227)
www.medicare.gov

 

Posted on November 8, 2012 .

This is my journey


I will share my thoughts, feelings, and distinctly unconventional approach to breast cancer in a slide show presentation of photos documenting my battle with the disease. Directed toward young women, older teens, cancer survivors, and their loved ones, the presentation seeks to enlighten and inspire the audience and demystify the processes and procedures related to treatment. This is My Journey is another in a growing number of Stupid Dumb Breast Cancer events designed to promote early detection, encourage advocacy, and generate an honest and straightforward conversation that continues long after the “official” Breast Cancer Awareness Month has ended.

Please join me at Fayettevile Free Library for my story. The doors will open at 7pm and I will begin to talk at 7:30pm. I am looking forward to this "friendraiser". The library seats 150 people so please arrive on time. This is just another confirmation to the community support. Some of the photos will be on display in the lirbray for the month of December, check them out.
Posted on November 7, 2012 .

The pink is in her head

Here are the facts. Because I have been so open about this Stupid Dumb Breast cancer especially to the kids the pink is in their head. They will not whisper about self breast exams, they will do it at an early  age. They will make sure their doctors give them a base line mammogram. They will be aware of their bodies because they know what breast cancer does to someone, the physical, mental and emotional. They see how it hurts the family because they are hurting. But they will know how to support a friend who is fighting the battle!! I love you Riley not just because you are like a daughter to me but because one day you will be larger than life and I know you will always have some pink sparkle for me!



Posted on November 7, 2012 .

Stacks for Racks!

Tonight was the Trapper's II event "Stacks for Racks" and it was a huge success. We raised $1000 for our Cure or Bust Race for the Cure team and Cancer Control Division in Radiation Oncology at the University of Rochester. My sweet friend Luke is a researcher there and they are doing some fantastic studies on joint pain. I am looking forward to taking a tour soon and eating a garbage plate, well I want to see the hospital really! 

I can not begin to tell you what tonight was for me. This whole journey, my girlfriends have been with me every step of the way, some right now on my heels! But tonight their husbands showed me some crazy support. Yes, it was poker and yes there was beer involved and yes they won some money and YES they stayed until the kids were in bed. The reality is that they would not have been there if they didn't  care about me or my rack. A special thanks to Brent's  dad Tom, the VFW donated a very generous and sweet envelope of money to us, again thanks that was so sweet.

A MAJOR like huge thanks to Trapper's II for hosting this event. I can not wait until the next poker and the "Bunco for the Bust" being held there. The staff is fantastic, the food yum and drinks cold! Alyssa was beyond helpful tonight, thanks so so much. My girlfriend Katie, even though she was sick, came down and helped run the desk until I got there! She has been so supportive and tonight would not have happened if she wasn't there. Damn 12 year old concert getting in my fund raising fun way! My hubby who normally stands by my side, was da man! I loved seeing him in stupid dumb breast cancer action, love you TFO.

The winners of the night go to Tom Stedman for 3rd, Rick Volcano for 2nd and Brent Stedman for 1st!! Andy Miller went away with the flat screen TV, I am sure one of his girls will be taking that.. My cousin Tommy won some SU tickets for this weekend, boy I hope he takes my friggin kids. Thanks again for all your generosity! 
Posted on November 5, 2012 .

Off to see one of my favorite docs.....

Today I meet with my OB/GYN to discuss a hysterectomy. UGH, not looking forward to this surgery, the happy drugs do not even help get me excited. The fact that ovarian cancer and breast cancer run so closely, this needs to be addressed. I have lots of cysts on my ovaries which caused them to do an ablation and some dusting and cleaning ( D & C to the medical world) in April. That combined with hormones leads to a recipe for cancer disaster. I am no where near menopause so the hormones are a major factor. So, now the question is do I or don't I? A hysterectomy is no friggin joke; major fucking roto rooting of my uterus, but the thought of ovarian cancer oh HELLLLLSSS NOOOOO.  The doctor knows best and I love my OB/GYN and the entire staff and I trust they will have my best health in mind. More than likely I will be spending my birthday in January recovering from yet another surgery. I definitely can play this cancer card for 10 years Heather, again thanks Jen:).

I hope you all see that stupid dumb breast cancer does not end with a mastectomy, chemo, radiation or lumpectomy. A lot comes into play. I also think that the choices I make are right for me and my body. These may not be the best for another person fighting the fight. Every doctor has a different path they advise and if you trust your doctor then go with what your doc and gut tell you. I am so happy that I LOVE all my doctors but this is my journey and the roads I am taking to my recovery. I will never recommend a procedure or tell someone what to do. I am here for your bitching adventure and that is all. Afterall, I am just a stay at home mom with stupid dumb breast cancer...what do I know?
Posted on November 1, 2012 .

Halloween stupid dumb breast cancer style!

Ok so I totally get adults supporting me. My family had no choice and I am pretty sure my friends are afraid of dealing with me if they didn't. But 12 year old kids blow me away. My son Ben's friends are really awesome. His friend Luke rocked Stupid Dumb Breast like no boy will ever. I always loved this kid but WOW!! He is a boy who loves soccer and hanging with his friends yet somehow, some way Stupid Dumb Breast Cancer is on his mind. I believe that this is how we will find a cure, how we will end cancer. Our kids hold it in their hands!

Awesomeness!

Then there are these 2 girls. Yes they know people who have been affected by breast cancer so I get why they dressed like this.

 
But they took it up to a whole new level. They did not get candy on this Halloween. They asked for donations! This was so generous and kind. This is how children become women and men of the future. This is how we end breast cancer. This is how I believe in HOPE. So when you sit back and watch this you will not be able to find negativity in this, if you do, well you lose. I find two girls on a mission, two girls trying to be charitable, two girls who want a CURE, two cure and a boy with HOPE.....and a very LOUD woman who is so proud of this generation!


 
 

Posted on October 31, 2012 .

Huephoria

My wonderful friends at Huephoria have done it again! They are offering 25% percent of the glass sales to our team CURE OR BUST when you purchase the glass "Hue for a Cure". These beautiful glasses are not only functional but you are supporting local women. Plus, they are donating to stupid dumb breast cancer, LOVE it!! So get your glass today.

http://www.huephoria.com/cure-wine-glass/ is the link, check out their other styles too!
 
 
 
Posted on October 31, 2012 .

The end of Breast Cancer awareness month

My dad trying to obey the "no crying rule" before may mastectomy, wasn't easy for anyone.



This is the end of breast cancer awareness month and it made me think (yes that can only mean I need to  blog). BEFORE I got stupid dumb breast cancer I was a huge supporter of this cause, like massive. Just ask any team member of Cure or Bust and they will tell you how hard I tried to raise money for CNY Komen. I have a love for emails especially.  I always wanted the team to focus on the celebration of life, whether it is the lives fighting, surviving or lost I wanted to celebrate their battle, nothing says celebrate more than Jello-O shots! I wanted people to go to the race and be empowered by the pink sea of survivors, to see their family walking next to them to show their support and to see the friends who are wearing tutus honoring their friends. The day is really incredible! Did you register yet? I owned pink tie dyes with ribbons and other paraphernalia to show support. I would have people say to me "When did you have breast cancer?" I would reply "NO NO NO I never had it I am just supporting the cause". I was all about breast cancer awareness before then WTF May 5th came and smacked me.

I had no clue what was going to happen but I knew I wanted to be a survivor. I only told very few about the lump, the mammo and the lumpectomy, why worry anyone when it was probably nothing. I still remember standing in my doctor's office and hearing her say "I had to look at the name 5 times on this pathology report". I knew I had fucking cancer she didn't have to say it. The blog was born! Literally, instantly I wanted it out there. Yes, the photos came after but the idea was brewing.  I wanted to be public about it because that is how I was handling it. I was so scared because yes I knew women who won but I knew so many that died. I lost my mother from tragedy at 1 so the reality of my kids growing up without me was too fucking real. The harsh truth of my dad without my mom scared me for Tom. Death is fucked up and leaves an aftermath of pain that is embedded forever and I did not want that for my people. Plus I sparkle way too much!

So as I post on FaceBook or blog it's my way of spreading awareness of cancer. I want people to be aware of ALL stages and to hear so many different stories. Listen to Jackie, Ashley, Dolores, AnneMarie, Kate, Shari because their story by help you or someone you know. Yes if you actually read through my blog I do talk about other cancers but people I have breast cancer so that is what my focus is. I did not get the "easy" cancer I got CANCER. I was fortunate enough to have caught it early, but still suffering from all it brings. I have scars and surgeries and more doctor's appointments and tests then I ever want for anyone. Easy my ass and I got a big ass! I am doing all this STUPID DUMB BREAST CANCER for all those fighting, being diagnosed, and leaving this earth. I am raising money and awareness for them. I want people to see a small part of my journey and what the harsh reality can be. People walked away for the show with that and more. The pride in my family, my children, husband and friends eyes of being a part of this was awesome! They get it and they are my soapbox from where I yell, very loudly I might add.
 
I am done with the negativity- do not bring it to my page or the posts. I am here to raise awareness. If  you do not like it, I am sure there is another blogger you will like, none with fabulous shoes like me:) But this is not about me, it is about stupid dumb breast cancer and those it affects. I have raised the bar (Pink Stiletto anyone?) in what is expected of the pink ribbon.  November 1st does not end Breast Cancer Awareness month for me because I am aware every time I look in the mirror, I am painfully aware. I hope you all continue to read my blog, post on Face Book and join my Cure or Bust team because I am not stopping. I am not stopping until the pink ribbon is replaced by a pink stiletto!



Posted on October 26, 2012 .